Things I Wish I Wrote

Sometimes I come across an article that I think is the perfect expression of a topic that is so important to living with an illness like Chronic Fatigue Syndrome in Fibromyalgia.  Though I may wish I wrote it myself, it makes me want to share it with everyone I can.  These are a few examples.

The Spoon Theory

Christine Miserandino’s essay provides the single best analogy I’ve heard for what it’s like to live with a chronic illness like CFS/FM (or, in the author’s case, lupus).

How to Ask for Help

Toni Bernhard, a former law professor who was forced to retire to do her CFS-like illness, is a brilliant writer and I admire many examples of her work.  I chose this particular topic because it’s so difficult–and so important to understand and to learn.

The E Word

A well-written article by Jennifer Spotila, J.D. that outlines the dilemma that CFS sufferers and their health care providers face in regard to exercise.  She articulates the complex and delicate balance of increasing physical activity without causing dangerous exacerbation of symptoms.

Finding Your Energy Envelope

Bruce Campbell, Ph.D. expertly articulates one of the most essential concepts for learning to live with Chronic Fatigue Syndrome and Fibromyalgia, the “Energy Envelope.”

The Stigma of Chronic Fatigue Syndrome

Another of my favorites from Toni Bernhard, this column perfectly expresses the unique mixture of confusion and shame that we may sometimes feel when trying to explain our history and condition to a new doctor.

Witch or Martyr??  How to Live with Others

A well-written article by Deborah Barrett, Ph.D. that delves into the unique challenges of  interacting with the outside world when suffering with chronic pain and fatigue.  She offers meaningful insights and practical strategies for maintaining relationships while minimizing discomfort.

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